Addressing and mapping patient organisations within a disease as well as relevant cross-indication organisations, such as ACHSE e.V. (German National Alliance for Chronic Rare Diseases), Stiftung Deutsche Krebshilfe (German Cancer Aid) or BAG Selbsthilfe e.V. (umbrella organisation of self-help organisations in Germany). Here, too, the aim is to understand the respective situation and the specific challenges as well as to identify concrete participation opportunities. Formats include get-to-know-you meetings, sounding or advisory boards. Pharmaceutical companies can use this as a basis for planning individual and long-term collaboration with the various organisations and for implementing projects within their patient advocacy strategy. These are often awareness campaigns, patient days or intersectoral roundtables with other relevant players. If your job description has anything with ‘advocacy’ in it, you need this.

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