Handbook: Good Patient Co-Creation

As patient orientation grows, so does the need for suitable formats for long-term and structured cooperation with patients and relatives in order to jointly develop services that meet their needs. So here are our top 10 things to look out for.

Orphanet Paper: Patient journey cervical dystonia

We created this patient journey of Lilly, a European woman living with cervical dystonia in cooperation with Ipsen and Dystonia Europe. Lilly’s journey is based on the results of a survey of European patients living with CD.

Interview: Importance of Patient Programmes

In the specialist magazine Pharma Relations, we shared our views together with others on the future of patient support programmes. We would like to see PSPs made available to all patients with a certain indication, regardless of their therapy.

Story: Hi, I’m Talina and I have lymphomatoid papulosis

Talina is a vibrant young woman in her late 30s. She works in addiction support, recently got married, likes concerts, and wants a family of her own. Talina also has lymphomatoid papulosis, a rare benign T-cell pseudolymphoma affecting the skin. And this is her story.

Paper: Successful Patient Engagement anyone?

How does successful patient engagement work, what meaningful opportunities are there for using patient engagement across the PLC, and how can companies approach the topic? If you are still in the early stages and are looking for an overview, you should take a look here.

Article: Good Patient Support Programmes

Only by involving patients and jointly designing programmes can services be developed that are relevant and in line with their needs. THAT’S IT IN A NUTSHELL! You can read here how to do this successfully. A PSP is only good if those affected by a disease and organisations recommend it.